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Ehlers-Danlos Community Members

A supportive group of individuals with Ehlers-Danlos Syndrome sharing experiences and insights.

Ehlers-Danlos Syndrome
Chronic Illness
Support Group
Disability Awareness
Community
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People

R
@wrrrdnrrrdgrrrl.com

Author. Activist. Disabled. Queer. Defective manic pixie dream girl.

B
@badmedicaltakes.bsky.social

Posting the worst medical takes. Have a submission? DM or @ me. #MedSky

L
@lianabrooks.bsky.social

American Author in Korea -Freelance Editor - Ehlers-Danlos Spoonie - Rroma - Rep'd by Cherry Weiner Literary - She/Her/Your Worship www.LianaBrooks.com My Books: https://www.lianabrooks.com/books/ Hire Me: https://www.lianabrooks.com/editing-services/

G

Canadian| Disabled| Mom| Writer| Supporter of writers| Community Lead & Proofreader at Cold Open Stories| Reader and Ass't Editor @wishbonewords.bsky.social| Copyeditor| Published 20+ short stories https://linktr.ee/gen_writes https://ko-fi.com/genwrites

ED RN (not practicing) | entrepreneur | purveyor of #liquorporn | dog lover 🐾 | small business owner | bartender 🍸| Ehlers Danlos | migraineur | chronic pain |mental health matters | 🌈ally | zebraπŸ¦“ | #BlueCrew πŸ”΅ 🚫 magats 🚫 musk 🚫porn 🚫 DM w/o permission

E
@ehlersdanlosdaily.bsky.social

Hi, I'm Lauren. I'm a US-based artist (LaurenRubinArt.com; thank you for your support!) and a zebra (EDS, POTS, epilepsy, MCAS...should I go on?). This account is specifically for those who want to keep abreast of news and information of interest to EDS.

Neurosparkly fae bardlock, lvl 45. Worldbuilder, TTRPG designer, digital artist, editor. My body is a haunted house with fucked up wiring and ghosts in the attic. Kindness is punk. PUNCH NAZIS! FUCK AI! https://linktr.ee/pajamazonwordworks

P
@peoplepaula.bsky.social

Comedy Writer | Photographer Ehlers-Danlos Syndrome | Dx 2010 πŸ¦“ USC Cinema & SpΓ©os Paris grad DC ✈️ LA

@decriminalizearson.bsky.social

Disabled anarchist, pets cats in sleep. If I weren't homebound I'd be torching a police cruiser. EDS patient, happy to talk about if you're down with the syndrome Bi, they/them pronouns, 31 years old. Frequently NSFW, minors DNI plz

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