Back

Ehlers-Danlos Community Members

A supportive group of individuals with Ehlers-Danlos Syndrome sharing experiences and insights.

Ehlers-Danlos Syndrome
Chronic Illness
Support Group
Disability Awareness
Community
View Starter Pack on Bluesky

People

R
@wrrrdnrrrdgrrrl.com

Author. Activist. Disabled. Queer. Defective manic pixie dream girl.

B
@badmedicaltakes.bsky.social

Posting the worst medical takes. Have a submission? DM or @ me. #MedSky

L
@lianabrooks.bsky.social

American Author in Korea -Freelance Editor - Ehlers-Danlos Spoonie - Rroma - Rep'd by Cherry Weiner Literary - She/Her/Your Worship www.LianaBrooks.com My Books: https://www.lianabrooks.com/books/ Hire Me: https://www.lianabrooks.com/editing-services/

G

Canadian| Disabled| Mom| Writer| Supporter of writers| Community Lead & Proofreader at Cold Open Stories| Reader and Ass't Editor @wishbonewords.bsky.social| Copyeditor| Published 20+ short stories https://linktr.ee/gen_writes https://ko-fi.com/genwrites

ED RN (not practicing) | entrepreneur | purveyor of #liquorporn | dog lover 🐾 | small business owner | bartender 🍸| Ehlers Danlos | migraineur | chronic pain |mental health matters | 🌈ally | zebraπŸ¦“ | spoonie 🚫 magats 🚫 musk 🚫 DM without permission

E
@ehlersdanlosdaily.bsky.social

Hi, I'm Lauren. I'm a US-based artist (LaurenRubinArt.com; thank you for your support!) and a zebra (EDS, POTS, epilepsy, MCAS...should I go on?). This account is specifically for those who want to keep abreast of news and information of interest to EDS.

Neurosparkly archfey w/chronic pain and a thirst for merry chaos. Writer, worldbuilder, TTRPG designer (Jamie Wyman.) I dig games, tarot & art. Punch Nazis. Fuck AI https://linktr.ee/pajamazonwordworks pfp @greenfinchG

P
@peoplepaula.bsky.social

Comedy Writer | Photographer Ehlers-Danlos Syndrome | Dx 2010 πŸ¦“ USC Cinema & SpΓ©os Paris grad DC ✈️ LA

@decriminalizearson.bsky.social

Disabled anarchist, pets cats in sleep. If I weren't homebound I'd be torching a police cruiser. EDS patient, happy to talk about if you're down with the syndrome Bi, they/them pronouns, 31 years old. Frequently NSFW, minors DNI plz

View Starter Pack on Bluesky

Similar packs